Dwarfism Research Today is a free monthly online journal that collates and summarizes the latest research about Dwarfism, including details on genetics, diet, mental and motor development. | ||||||
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Recommended Books on Dwarfism
This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Centers for Disease Control (CDC), Food and Drug Administration, and the National Institute of Child Health and Human Development (NICHD). Contents include clinical and medical information, with information on signs, symptoms, testing, diagnosis, and more. In addition, as a bonus we have included an encyclopedic collection of general medical and health documents - thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with FDA drug and medical publications, government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers' health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government. This CD-ROM has over 29,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable! Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.)
Few movies have ever achieved the popularity and acclaim of The Wizard of Oz. It made the reputations of Judy Garland and many others, but ironically, the diminutive actors and actresses who peopled Munchkinland weren't even listed in the credits. Most of us have never heard their names. Now their story is finally told in a new and revised edition as thirty ex-Munchkins reveal their amazing personal stories. The Munchkins of Oz offers a fresh perspective on the filming of The Wizard of Oz and what went on behind the scenes. We learn about life on the Munchkinland set, how they were recruited, intimate memories of the stars, and the Munchkins' lives before and after Oz. More than 300 photos, many first published in this book, illustrate and enhance the lively text. ENTERTAINMENT; FILM 300-PLUS B/W ILLUSTRATIONS 8-PAGE COLOR INSERT 8” X 10”, 224 PAGES PAPERBACK In Patti Frazee's astonishing debut novel, enchantment and illusion casually commingle with reality as the Borefsky Brothers Circus makes its way across the American Midwest in the summer of 1900. Mariana, the fortune teller, makes herself invisible and drifts through the nighttime circus, listening in on conversations and watching over her beloved Shanghai, a fire-breathing dwarf who closely guards his secrets, even from Mariana's second sight. Conjoined twins Atasha and Anna cling to each other and weep for their home and for their mother and father who sold them to the circus. Jakub, the circus manager and husband to Mariana, fears his wife's gifts, grieves his own failures, and drinks to forget it all. The stories and closely guarded histories of the troupe of performers dance around each other until a love affair between Shanghai and Atasha destroys the delicate balance. As secrets are revealed and old wounds are opened, the consequences are unbearable to some and liberating to others. Lyrically graceful and populated by vividly drawn characters, Cirkus is a haunting novel of devastating heartbreak and exquisite loveliness. "For everyone who has ever dreamed about juggling fire, spinning in space, or falling in love with the girl on the flying trapeze."-Judith Katz, author of The Escape Artist and Running Fiercely Toward a High Thin Sound "The freaks' of Cirkus are fully realized, poignantly drawn fictional characters. Conjoined twins Atasha and Anna, in particular, are so intimately portrayed that Frazee herself strikes me as a conjurer, a channeler of separate human experience."-Alison McGhee, Author of Rainlight, Shadow Baby, and Was it Beautiful? "A feast of words and dreams.Frazee's women are passionate spirits as vivid as those in the best fairytales, and still are real-their experiences a raw truth."-Susan Power, author of Roofwalker and The Grass Dancer Patti Frazee teaches creative writing at The Loft Literary Center in Minneapolis. A native of Nebraska, she received her BFA in theater from the University of Nebraska/Kearney and her MFA in writing from Hamline University in St. Paul, Minnesota. She received an honorable mention for the Astraea Lesbian Foundation for Justice 2005 Emerging Lesbian Writer's Fund. She lives in Minneapolis, Minnesota.
No one, that is, until she meets Pia at the circus. Pia is a lion tamer -- strong and fearless and, most important, a dwarf like Trudi. When Pia asks for a volunteer to step into the ring, Trudi doesn't hesitate. And together, they weave tales of a magical island where people are little and never lonely. After the enchantment ends, Pia shares a secret with Trudi: Feeling that you belong starts with loving yourself. Adapted from Ursula Hegi's best-selling novel Stones from the River -- and perfectly paired with Giselle Potter's poignant illustrations -- this moving story of a girl's search for acceptance captures what it feels like to be different...and then what it feels like to realize that you're not.
Dr. Kopits takes me into an examining room and leans against the stainless steel bench and asks me what I'm writing about this time. When I tell him what I saw in Australia, he immediately starts to nod. "This is a great subject," he says. Then he stops, as if caught by the subject himself. I wait. After a moment, he continues. "What you are looking into is the abyss. This takes you to the very heart of a human being, to the deepest aspect of the soul. He gives me one of his solemn looks. "Because the thing is, you have to confront yourself." (from In the Little World) In 1997, almost by accident, John H. Richardson found himself sharing a hotel with more than a thousand dwarfs. Over the course of a single week, he witnessed love and anger, fear and bravery, arrogance and humility, even a bizarre romantic deception -- the entire spectrum of human emotion in one concentrated dose. But at the end of the week, he discovered that leaving the "Little World" wasn't as simple as checking out of a hotel. In fact, his journey would last a full two years. At a time when bigger often seems synonymous with better, and physical beauty serves as currency, the world of dwarfs usually passes beneath our notice. Now, in this groundbreaking work, awardwinning author John H. Richardson brings the Little World into focus. He introduces us to characters like a saintly but obsessed doctor and a mother who sacrifices her family to save her dwarf daughter. He follows two dwarf lovers from first meeting through the struggle to overcome their fear and shame and find the confidence to love each other. He becomes personally involved in a tangled and often confrontational friendship with a female dwarf. Through these stories and musings ranging from classic theories of beauty to the history of the disability movement to postmodern theories of difference, Richardson presents a world that is a skewed reflection of our own -- and offers us a glimpse into the essential human condition.
A week after her birth in 1992, Dan Kennedy's firstborn daughter was diagnosed with achondroplasia, the most common type of dwarfism. Reassured by doctors that Becky would have normal intelligence and a normal life span, Dan and his wife, Barbara, quickly adjusted to the reality of her condition. What wasn't so easy was grasping people's attitudes toward those with physical differences.
In Little People, award-winning journalist Dan Kennedy explores dwarfism from ancient times, when dwarfs held an honored position in some cultures, to more modern days when they were featured in freak shows and treated as human guinea pigs by Nazi scientists. While sharing his own poignant experiences, Kennedy works in wonderful passages about dwarf subculture, including the fever pitch of the dating scene during the annual Little People of America convention, and the caste system that exists among those with different varieties of the condition. Kennedy profiles individuals whose small stature has helped them to succeed, and others who have allowed themselves to be exploited and abused. But the most controversial ground covered in the book is the author's hard look at medical screening procedures, or designer genetics, that already make it possible for parents to eliminate differences ranging from dwarfism to Down syndrome and could soon target genetic traits such as manic depression and homosexuality. While it is true that there has never been a better time for those who are outside the mainstream, whether one is wheelchair-bound, mentally challenged, or gay, it is also clear that most parents do not wish these differences for their own children. Kennedy argues that there is a cultural value to preserving differences, and that eliminating them may harm society in unpredictable ways.
This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century -- particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases. Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care -- transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families. The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals -- physicians, nurses, genetic counselors, social workers, psychologists, and medical students.
© 2005-2008 Dwarfism Research Today. All Rights Reserved. |
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